19
Apr
19/04/2022 10:00 AM o'clock - 07/05/2022 01:15 PM o'clock
Online workshop 19 April 2022
EVENT Cross-Border Data Integration for Personalised Medicine: Legal & Ethical Stakeholder Workshop
The Legal & Ethical work package of EU-STANDS4PM will host an online workshop to present the the legal & ethical work on data integration for personalised medicine. Presentations will cover data protection, research ethics & patients’ rights.
19 April from 10:00-13:15 CEST
By Miranda Mourby, Mette Hartlev, Eugenius Gefenas, Jurate Lekstutiene, Vilma Lukaseviciene, Barbara Prainsack, Dominique Sprumont, Fruzsina Molnar-Gabor, Catherine Bjerre-Collin
We will present short summaries of our legal & ethical report on data integration for personalised medicine. Presentations will cover data protection, research ethics and patients’ rights. Our report can be downloaded from the EU-STANDS4PM website, and is entitled:
'Harmonization and integration of big data of relevance for personalized medicine into in silico modelling? – Recommendations for technically feasible, and ethico-legal sustainable avenues.'
Our expert commentators and stakeholders will be asked to provide feedback on our recommendations; this will help refine our final project output & promote an interactive discussion among all attendees. We will have a broad range of international input with legal, ethical, regulatory and scientific experts.